Clinical Registries

Meeting presentations

• ANZICS Outcomes Audit and Research (Graeme Hart)
• What is the role of ICNARC? (Kathy Rowan)
• Victorian Spleen Registry (Penny Jones)
• VSTORM
• BioGrid (Henry Gasko)
• Haemostasis Registry (Louise Phillips)
• Cardiac Surgery Registry (Diem Dinh)
• ANZDATA (Rowan Walker)
• Swedish National Stroke Registry (Thomas Linden MD, PhD. National Stroke Research Institute, Melbourne and Gothenburg University, Sweden.)
• Australian Clinical Quality Registries Update (Niall Johnson, Australian Commission on Safety and Quality in Healthcare)
• ANZDATA: Stephen McDonald: Convenor, The Australia and New Zealand Dialysis and Transplant Registry (ANZDATA)
• Registry of Registries (Sue Evans)
• The impact of ehealth on clinical registries (Karen Gibson)
• Long term patient outcomes data: Victorian state trauma registry (Dr Belinda Gabbe)

Other related presentations

• Record Linkage at the Department of Human Services, Past and Future (Vijaya Sundararajan)
• The use of web data management systems for registries (Andrew Hannaford)
• Registry Operating Standards (Sue Evans and Peter Cameron)
• Principles in Managing a Registry: Public Surveillance Systems as Grants verses Contracts. Allan J. Collins, MD, FACP. Professor of Medicine, University of Minnesota, Director, United States Renal Data System, NIH, NIDDK, DKUHD, Principle Investigator, CDC State Level Detection Program
• Live data feeds and use of HL7 in Clinical Cancer Registries: lessons in how to receive data quickly and in a standardised format. Neville Board: Information Strategy Manager, Australian Commission on Safety and Quality in Health Care.