Resources

Registries

NEW PRESENTATION

How to Run a Successful Registry: Lessons From The USRDS (PDF)
A presentation from Allan J. Collins, MD, FACP Professor of Medicine University of Minnesota Director, United States Renal Data System, NIH, NIDDK, DKUHD Principle Investigator, CDC State Level Detection Program.

Haemostasis Regisrty
Summary of the Haemostasis Registry:  A register to record all off - label use of recombinant activated Factor VII in Australia and New Zealand.

Registries - Their purpose and function (PDF)
This report provides health administrators, Ethics Committees, Registry custodians and researchers with a tool to assist in using and evaluating the worth of clinical registries.  Clinical registries are increasingly being recognized as important tools to assess the quality of health care delivery, both within Australia and internationally.  As a result, investment is being made into identifying registries currently in existence ¹ and attributes of good registries. ^{1, 2} In addition, there is increasing discussion and debate of issues relating to the use of data contained within registries. ^{3, 4}  

Registries collect data about aspects of the health of individual persons. ⁵  This report provides an overview of attributes of clinical registries, including the type of data which should be collected and how the integrity of the data should be maintained.  Clinical registries refer to those registries which are collected in clinical settings to monitor practice. Data integrity encompasses both the need to check the quality of the data being collected, entered and analysed and the ethical considerations needing to be addressed before data collection begins. References

Registry of registries final report: This report was developed to highlight registries currently in existence in Australia and capable of measuring quality of care at either an institutional or clinician specific level.

Workshop Presentations

Doing good quality research: (PDF)
Presented by Dr Sue Evans and Professor Peter Cameron at the 4th Australaisan Conference on Safety and Quality and Health Care. 21-23 August 2006